The medication (Sinemet) that I take every 3 hours gives me functionality for anywhere between 15 minutes and 90 minutes each cycle, and sometimes not at all. I am completely dependent on it and the availability of this drug makes a tremendous difference to the quality of my life. Many years ago when I first heard about this medication I was so angry. The side effects seemed so much worse than the symptoms of the disease, at least as I was experiencing them at the time. And also the medication stops working altogether after 10-15 years.
Then I heard that this medication was only discovered sometime around 1968. I realized that this means that, if I had been living with this disease 45 years ago, I would not at this point in my life have any function at all. Also laptop computers, the Internet, and email had not been invented at that time. These technologies are lifelines for me, and I am only able to use them because I have some amount of functional time every day. Without technology and this medication, my life would be radically different and most of what I now do during my day would not have been possible just 40 years ago. The evolution of pharmaceutical and computer technologies over the past few decades provides me a profound degree of freedom in how I live my life. And the anger that I initially felt has now become profound gratitude that this medication is available.
From looking back to looking forward, even 10 years from now, it’s clear that the whole landscape of living with Parkinson's is going to be radically different. Looking at my situation in this way and seeing how evolutionary the continuum of life is, creates a context of understanding and a perspective that reveals that we are all part of an evolutionary process. And that this continually evolving process, which is a constant reaching forwards and upwards to create the new, is an illumination of the inherently positive nature of life itself.
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Hi Mags,
ReplyDeletewhat a great perspective on your illness and on illness in general. I just looked and the average life expectancy for an American male in 1910 and it was around 48 years. In so many ways, we have come so far as a species with regards to our health and longevity.
Take care.
Mike